There are some bad things that happen to good people at least once in a lifetime. Getting fired from a job. Getting a speeding ticket. Stuff you try to avoid. This past Sunday I was in Manhattan for the day with my partner Julio. We go in often enough that it's fairly routine. I carry my meds with me for the day. I start to fade around 3 or 4pm, take the train home at that time, Julio comes back later in the evening. No problem. But this time J. said stay till 8pm & then i'll come back with you. I just was not thinking. I took my last dose at 6:30pm. I had no extra stash at all. Nada. Zip. Zero. I keep extra doses in my car, but that was parked back in Jersey. I screwed up. I was panic stricken. We missed the 7pm train out of Penn Station, the next one was at 8pm. What a nightmare. Of course the train was full of loud drunks, screaming babies, the whole nine yards. I was not a pretty sight. So I learned the hard way NEVER to go anywhere, anytime, anyplace without lots of extra carbidopa/levodopa. Each dose only lasts 2 1/2 hours. Now I know why the "off-state" is often mistaken for being drunk when strangers see you in public. I guess it happens to any person with PD at least once. But you'd think that after living 9 years with PD, I'd know better !
I spent Labor Day weekend in NYC visiting friends from Chicago. I had mentioned to them in an earlier email that I was pretty good during the day, but not so good at night. Sort of a "sundowning" effect. I actually did much better than I expected - even J. mentioned it - so I felt good about that. I still dread friends seeing me in an "off-state", especially as my face tends to stiffen up, making it difficult to talk. But I continued on, popping extra doses of carbidopa/levodopa before going out to the movies, or a late dinner, or an evening walk. I was so happy to be with A & H, that it lessened my symptoms. Laughter and stimulating conversation can do wonders.
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